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chasing dreams

   This is only seven days into my challenge of writing a post every day, but I am going to finish what I started.  There is nothing worse than defeating yourself from the very beginning.  I find myself doing that quite often now that I am old enough to realize is going on in my little head, I fight harder in order to beat the odds of my condition.
    Actually knowing that I have the condition makes me more thankful each day that I have 22q because I would not be me if I had something else.  There are so many things that I would like to say on this blog, but no words could describe what it is like to be in your own little world, without having a leader. I mean I had wonderful leaders, but no one could pin point exactly what was wrong. I am glad however, because if I had known at an early age that I have a syndrome, I probably would not have pushed myself to accomplish what I was able to accomplish.
    So many people see what is on the outside and they fail to take their visors off for a minute to see the persons "heart condition." I k now that people probably knew something was wrong as they would stare out my asymmetrical smile or wonder why I could not understand directions like a normal child would understand them.  I was taught that every child learns in their own way and that is what I will still tell anyone that asks me.
    I am not ashamed anymore to talk about my syndrome and I am praying for strength to be able to open up more about it and let people know that it is okay to be them. It is okay to be different and it is okay to not fit in exactly how the crowd says.  If I had been part of the crowd, I know I would not have as much strength as I do now to keep going.  God was preparing me for the road ahead in my own little special way.
     Still there is a lot I wish I could have accomplished, but I am so thankful that I was able to go through as much as I did and still come out on top of the world, just like any normal person. I believe that everyone has their own journey or path to follow and we must be the person to find that path.  God gave us all sense enough to follow our own dreams because those dreams are something no one can take away from us. So fight the fight, pray without ceasing and drink coffee! ( or whatever it is that helps you keep one foot in front of the other.)   #dreamchaser#22q#beblessed

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